More than 10,000 rare diseases affect up to 400 million people worldwide, and those with rare diseases struggle for about six years on average before they receive an accurate diagnosis. But data-driven innovations are unlocking answers about rare diseases—as well as more common diseases—faster than ever before.
Meet the Next Generation of Leaders Advancing Data Science and Informatics at NLM
Guest post by Virginia Meyer, PhD, Training Director for the Intramural Research Program, National Library of Medicine, National Institutes of Health. Working at NLM means being at the forefront of innovation in the rapidly evolving fields of data science and informatics. Within that environment, the NLM Intramural Research Program (IRP) is dedicated to supporting individuals … Continue reading Meet the Next Generation of Leaders Advancing Data Science and Informatics at NLM
Help Us Modernize NIH’s Genomic Data Sharing Policy
Guest post by Taunton Paine, MA, Director of the Division of Scientific Data Sharing Policy, NIH Office of Science Policy Behind the NIH Genomic Data Sharing Policy In November 2021, NIH published a request for information seeking public input on the future of the NIH Genomic Data Sharing (GDS) Policy. Originally published in 2014, the … Continue reading Help Us Modernize NIH’s Genomic Data Sharing Policy
The Science of SARS-CoV-2 Testing: What Tests Are Available and What This May Mean for You
Guest post by Clem McDonald, MD, Chief Health Data Standards Officer at the National Library of Medicine COVID-19 testing equips individuals with the information they need to protect themselves and others, and arms public health professionals with data that can inform response efforts. Recently, leadership across NIH articulated why widespread testing is necessary, important, and … Continue reading The Science of SARS-CoV-2 Testing: What Tests Are Available and What This May Mean for You
Women in Tech at NIH: Togetherness Enables Transformation
Guest post by Susan Gregurick, PhD, associate director for data science and director of the Office of Data Science Strategy, National Institutes of Health. There is an African proverb that says, “If you want to go fast, go alone. If you want to go far, go together.” As I approach my first anniversary as the … Continue reading Women in Tech at NIH: Togetherness Enables Transformation
A 21st-Century Approach to Health Services Research: NLM Moves Forward with You in Mind
Guest post by Doug Joubert, head of User Services and the National Information Center on Health Services Research and Health Care Technology, National Library of Medicine. NLM has a strong record of involving its stakeholders in the strategic decisions that drive the products we develop and the services we offer. As the world’s largest biomedical … Continue reading A 21st-Century Approach to Health Services Research: NLM Moves Forward with You in Mind
Why Testing is the Key to Getting Back to Normal
This piece was authored in collaboration with the leadership across NIH and represents a unified effort to meet the challenges presented by the COVID-19 pandemic with excellence and innovation. One thing we know for sure – every single person can help our country control the COVID-19 pandemic. From wearing a mask to washing your hands … Continue reading Why Testing is the Key to Getting Back to Normal
In Celebration of the NLM Workforce on Labor Day
Since its inception in 1882, Labor Day has served many purposes in the United States. Celebrated on the first Monday in September, this observance is a creation of the labor movement and dedicated to recognizing the contributions and achievements of American workers. Over time, Labor Day weekend has become a symbol of the unofficial end … Continue reading In Celebration of the NLM Workforce on Labor Day
NLM Strategic Opportunities and Challenges: We Want to Hear from You!
Guest post by Mike Huerta, PhD, director of the Office of Strategic Initiatives and associate director of the National Library of Medicine, National Institutes of Health. “A Platform for Biomedical Discovery and Data-Powered Health,” NLM’s current 10-year strategic plan, envisions three goals with a 2027 horizon: Accelerate discovery and advance health through data-driven research.Reach more … Continue reading NLM Strategic Opportunities and Challenges: We Want to Hear from You!
Glad to Meet You Virtually: Reflections on the MLA Conference
I’ve just “returned” from the Medical Library Association (MLA) ’20 Conference Live Action Week held August 10–14. After much deliberation and rescheduling, this meeting, like so many others, was reimagined in a virtual format using video, text and chats, and online presentations to connect attendees. Returned is a funny term because, of course, I didn’t … Continue reading Glad to Meet You Virtually: Reflections on the MLA Conference