More than 10,000 rare diseases affect up to 400 million people worldwide, and those with rare diseases struggle for about six years on average before they receive an accurate diagnosis. But data-driven innovations are unlocking answers about rare diseases—as well as more common diseases—faster than ever before.
Our Libraries: Keeping Hope Alive for Heart Health
Right now, I am reading The Paris Library by Janet Skeslien Charles. One quote that struck me the most is, “Libraries are lungs. Books the fresh air breathed in to keep the heart beating, to keep the brain imagining, to keep hope alive.”
Giving Thanks Where Thanks is Due
One of the great joys of being the Director of the National Library of Medicine is the many opportunities for me to express gratitude. In the past, I have given thanks to NLM staff who are veterans (2021), for progress during my tenure (2020), and to our amazing NLM staff members (2019). This year, I … Continue reading Giving Thanks Where Thanks is Due
When You Stand on the Shoulders of a Giant, What Do You See?
This blog contains my remarks from the 2022 Lindberg-King Lecture and Scientific Symposium: Science, Society, and the Legacy of Donald A.B. Lindberg, M.D., which took place on September 1, 2022. Watch a recording of the event here. https://www.youtube.com/watch?v=QTDPTxjL6oc&t=10617s I had the great fortune of becoming the director of the National Library of Medicine immediately following … Continue reading When You Stand on the Shoulders of a Giant, What Do You See?
Promoting Accountability to the Public
One of the most important commitments of NIH leadership is to uphold the public’s trust. Funding for NIH comes through tax dollars appropriated by Congress, and it is expected that NIH will spend these funds in a way that best serves the needs of the public. Within NLM, this means that we allocate our more … Continue reading Promoting Accountability to the Public