NLM Musings from the Mezzanine
Innovations in Health Information from the Director of the National Library of Medicine
Right now, I am reading The Paris Library by Janet Skeslien Charles. One quote that struck me the most is, “Libraries are lungs. Books the fresh air breathed in to keep the heart beating, to keep the brain imagining, to keep hope alive.”
As we start year three of the COVID-19 pandemic, it’s time for NLM to take stock of the parts of our past that will support the next normal and what we might need to change as we continue to fulfill our mission to acquire, collect, preserve, and disseminate biomedical literature to the world. Today, I … Continue reading The Next Normal: Supporting Biomedical Discovery, Clinical Practice, and Self-Care
Guest post by Anna M. Fine, PharmD, MS, acting director of ClinicalTrials.gov at the National Library of Medicine, National Institutes of Health.Earlier this year, we provided an update on NLM’s efforts to modernize ClinicalTrials.gov, the world’s largest publicly accessible database of privately and publicly funded clinical trials. NLM released a request for information, hosted public … Continue reading ClinicalTrials.gov Modernization Effort: Beta Releases Now Available
Guest post by Rebecca Williams, PharmD, MPH, acting director of ClinicalTrials.gov at the National Library of Medicine, National Institutes of Health. In 2019, NLM introduced a multi-year effort to modernize ClinicalTrials.gov, the world’s largest publicly accessible database of privately and publicly funded clinical trials. This effort was launched with a commitment to engage with and … Continue reading Progress Towards a Modernized ClinicalTrials.gov
Guest post by Rebecca Williams, PharmD, MPH, acting director of ClinicalTrials.gov at the National Library of Medicine, National Institutes of Health. As ClinicalTrials.gov celebrates its 20th anniversary on February 29, 2020, we’re asking for your input on how it can best continue to serve your needs for many more years to come. ClinicalTrials.gov is the … Continue reading Celebrating 20 Years of ClinicalTrials.gov and Looking to the Future
Guest post by Rebecca Williams, PharmD, MPH, acting director of ClinicalTrials.gov at the National Library of Medicine, National Institutes of Health. ClinicalTrials.gov is the largest public clinical research registry and results database in the world – providing patients, health care providers, and researchers with information on more than 300,000 clinical studies of a wide range … Continue reading Engaging Users to Support the Modernization of ClinicalTrials.gov
Guest post by Presidential Innovation Fellows Justin Koufopoulos and Gil Alterovitz, PhD. Getting into a clinical trial is challenging for patients. Researchers estimate that only 5% of patients eligible to participate in a cancer clinical trial actually take part in one. Many factors impact this statistic, including how findable and accessible is information about the … Continue reading Can “Nudging” Help?: Improving Clinical Trial Access Using Artificial Intelligence for Standardization
Guest post by Kevin M. Fain, JD, MPH, DrPH, Senior Advisor for Policy and Research, ClinicalTrials.gov. ClinicalTrials.gov is the largest public clinical research registry and results database in the world—and the most heavily used. As of today, it contains registration information for more than 260,000 studies in 202 different countries and results information on more … Continue reading ClinicalTrials.gov Moves Toward Increased Transparency